When Arlo was diagnosed with CF, I actually asked his paediatrician if I could take him out in the pram with the rain cover on if it was raining because I wondered if there was a risk with water or damp or condensation on the rain cover. I even asked his team if it was okay to walk through our town centre where the traffic is busy and the pollution might be bad. I would put blankets down on bone-dry grass as the idea of the soil below freaked me out. The list goes on …
Upon that first diagnosis, I could see risk in so many places. It’s a scary world for a parent dealing with those first throes of a CF diagnosis.
The idea of him playing rugby was certainly beyond me then!
But with a bit of time, with educating myself, and getting comfortable with making informed decisions, or making some small or creative alterations to make an activity safe for him, there’s really not many things that Arlo misses out on.
Yes, you can! 🙌
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