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A year ago today we found out about the little fault in your genes 🧬

nicoleedwards254


And I think you were glad that we finally knew 😍 Always such a smiley boy 💙

On this day last year Arlo’s paediatrician had come round to our house to tell us that cystic fibrosis had flagged up in Arlo’s newborn blood tests.


I remember being so shocked - and it’s been a rollercoaster ever since. But I wouldn’t change a thing. It’s not easy at times. CF is complex in so many ways - for both Arlo and for us as his parents. But I don’t waste any energy thinking about what if’s or why us.


This is us. And it’s perfect. 💕





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