The biggest victory of this week’s clinic was Arlo’s weight chart. He is now just under 11kg and has been tracking beautifully on the 91st centile since we started weaning in January.💃💃💃
A few people commented last week about how cute it is that he’s a chubby baby (and I highly agree 🥰) but fellow CF mamas know it means so much more to us than that! 💕
When Arlo was born the only indicator that anything might be up was that we were struggling to get him to put weight on. I know how lucky we are that we didn’t face much worse challenges as many CF babies have a much tougher start in life - NICU and bowel surgery due to meconium ileus being incredibly common.
But for us it was his weight that was the worry.
I swear I was one step away from post natal depression as I spent those first 3 weeks before his diagnosis battling anxiety over his feeding. Every feed that was good was quickly followed by a feeling of dread that the next feed might be bad. And any bad feed made me cry.
Before we knew that Arlo is pancreatic insufficient and he started on creon (digestive enzymes), Arlo was sitting on the 0.4th centile for weight. You literally can’t get any lower.
Once we started those magic granules his weight crept up and now since we started weaning him in January he has sat on the 91st centile for the last 3 clinics we have been to.
I’m so goddam proud of both of us. (And a little anxious that nursery won’t be as generous with the portion sizes (and healthy fats) as I am!)
Yes he just looks like a chubby baby now but I feel like we have been on such a journey with his weight. And to me it is much more than that.
Keep it up little man 💪💪💪
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