I started my running challenge in January (1,083.8 miles!). The sole purpose was to raise money for @cftrustuk and also to share with our friends, family (and anyone who might be interested!) what we were going through as new parents to a CF baby. I wanted to raise awareness by sharing the good (and for the most part it’s been a glorious journey!), the bad and the ugly (although Arlo is frigging cute so there’s not much ugliness here peeps!😜).
I remember the first post that I put on my personal Instagram profile when I announced the start of the running challenge (swipe to see it!) and it felt like a monumental step to even write down that Arlo has cystic fibrosis.
And whilst from the outside this challenge may have looked like a fundraising project, it became so much more.
I have been able to connect with other people in the CF community. I’ve been able to share some moments from our CF journey - some things that I maybe would not otherwise have shared. And boy have I learned so much - about cystic fibrosis but also about myself - and I have so much still to learn.
I can’t thank you enough if you have supported us on this ‘big jog’ - Arlo and I thank you from the bottom of our hearts.
But I do have one last favour to ask - let’s see if we can get this last £372 so I can reach my target.
I know it was an obnoxious target - I started at £2,500, then £5,000 and then I got greedy and went for £7,500!
But it’s an obnoxious target that equals the complexity of the cause - CF is different for every single person who has it. There is no cutting corners. No quick fix. It consumes our every day. We cannot miss a treatment. And no one drug works for everyone - YET! But with more funding for research - and more awareness raised - we can make a difference. For everyone affected by cystic fibrosis.
So please, if you can share my donation page, or even donate yourself - it will be much appreciated.
#cysticfibrosis #cf #cysticfibrosisbaby #cfbaby #babywithcysticfibrosis #babywithcf #cfirl #lifeofacfparent #lebigjog #whatthecf #100milestogo
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