What the CF?

Cystic fibrosis (CF) is a fairly rare and rather misunderstood life limiting genetic condition.

Life as a new mum is bonkers. Throw into the mix your son being diagnosed with cystic fibrosis at 4 weeks old and it becomes a rollercoaster of learning about the condition and how to do the best for your child.

Life is more challenging but also so much more vibrant.

Here is my blog - including some pieces from a diary I started in 2020 when our son, Arlo, was first diagnosed.

 
The hope is that it might help my friends and family to learn along with us as we are learning about CF and all that it entails. 

But I’m also hoping it might be useful for other parents with a new baby with CF.

And if nothing else - it’s something for me to look back on with Arlo when he is older! 

It’s a raw look at life as a new mum and as a ‘CF mum’.